Latest N E W S !

Thank you very much to everyone that came along to our first West Midlands Sarcoma Support Group meeting on Saturday 7th July.  We had a great get together and everyone benefited from mutual support, shared experiences and a friendly chat in a relaxed compassionate atmosphere. Thank you also to Claire Kelleher from Sarcoma UK for coming along to encourage us as we find our feet as a patient lead group.  It was a fantastic way to bring Sarcoma Awareness Week [#SAW2018] to a close and we look forward to building on this first step.

There was much enthusiasm to keep the momentum going and we will look to organise a second meeting in the Autumn – please keep an eye on this page for further details of date, time and venue.  Every one agreed that the John Lewis Community Hub at their Grand Central store was very convenient and an absolutely fabulous facility for groups like ours.

B A C K S T O R Y . . . 

My name is Mark, I am a sarcoma patient receiving post-operative care for a soft tissue sarcoma at the Royal Orthopaedic Hospital Birmingham [ROH]. I was surprised to find that there is no active, patient lead sarcoma support group here in the West Midlands – Especially given we have two centres of excellence at the ROH and at the Queen Elizabeth Hospital [QE].

Back in April, I travelled to London to join the London Sarcoma Support Group meeting. It was great to have the opportunity to meet other sarcoma patients in a friendly, compassionate and supportive environment. However, it was a long way and a relatively expensive train fare for a two hour meeting.  Now things have moved on, and thanks to the support of other sarcoma patients the seed has been sown from which our own regional group is growing.

N E X T  M E E T I N G  D E T A I L S

Planning for next meeting in the autumn is underway – please check back for more details.

This is a patient lead, non-clinical, sarcoma support group meeting, supported by, but independent of Sarcoma UK [www.sarcoma.org.uk – Support Line 0808 801 0401 – supportline@sarcoma.org.uk]. The group is also supported by, but independent of Macmillan staff at Birmingham’s Royal Orthopaedic and Queen Elizabeth Hospitals’ sarcoma centres.

If you would like to be part of the group and/or come along to our next meeting please drop me an email message or use the contact form below or leave a voice message/text 07949 305 835 – please include your name & contact details.






Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.